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  • My core: Conveying the everyday normality of living with congenital heart disease

Wray, Jo, Layton, Sofie and Biglino, Giovanni, 2021, Journal Article, My core: Conveying the everyday normality of living with congenital heart disease Cardiovascular Diagnosis & Therapy, - (-). pp. 1-3. ISSN 2223-3660

Abstract or Description:

Feeling different, that others do not understand what it is really like to live with congenital heart disease (CHD), is a frequent lament of patients, sometimes resulting in social isolation and a failure to maximise opportunities afforded by successful treatment. Patients can disengage from health care, with potentially deleterious consequences for themselves and their families, health care systems and wider society. But what is the answer—how do we help patients to normalise their experience whilst at the same time enabling those around them to gain a greater appreciation of what life is like for them? Art-making can be one way of addressing this and we present an example of our experience, engaging patients in the process.

Subjects: Other > Medicine and Dentistry > A900 Others in Medicine and Dentistry
Creative Arts and Design > W900 Others in Creative Arts and Design
School or Centre: School of Arts & Humanities
Funders: NIHR, Wellcome Trust
Identification Number or DOI: https://doi.org/10.21037/cdt21-387
Date Deposited: 21 Oct 2021 14:06
Last Modified: 21 Oct 2021 14:06
URI: https://researchonline.rca.ac.uk/id/eprint/4904
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